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Disability Language Style Guide

The style guide is intended for journalists, communication professionals and members of the general public who are seeking the appropriate and accurate language to use when writing or talking about people living with disabilities. The guide covers general terms and words on physical disabilities, hearing and visual impairments, mental and cognitive disabilities and seizure disorders. Entries are listed in alphabetical order. Click on the index to the left to jump to entries that begin with that letter.

Each entry includes a definition of the word or term, a summary of how it is used or viewed by disability groups and guidance, when available, from The Associated Press Stylebook. Finally, each entry includes the NCDJ recommendation, which strives for accuracy and aims to strike a balance between clarity and sensitivity.

You can also download a printable PDF of this guide by clicking here.

See also: “Terms To Avoid When Writing About Disability”


Background: This term is used to describe someone who does not identify as having a disability. Some members of the disability community oppose its use because it implies that all people living with disabilities lack “able bodies” or the ability to use their bodies well. They prefer “non-disabled” or “enabled” as more accurate terms.

NCDJ Recommendation: The term non-disabled or the phrase “does not have a disability” or “is not living with disability” are more neutral choices. Able-bodied is an appropriate term to use in some cases, such as government reports on the proportion of abled-bodied members in the work force. In some cases, the word “typical” can be used to describe a non-disabled condition.

AP style: Not addressed


Background: Abnormality is a term used to describe something deviating from what is normal. The term can be appropriate when used in a medical context, such as “abnormal curvature of the spine” or an “abnormal test result.” However, when used to describe an individual, abnormal is widely viewed as a derogative term. The phrase “abnormal behavior” reflects social-cultural standards and is open to different interpretations.

NCDJ Recommendation:

-The words abnormal or abnormality are acceptable when describing scientific phenomena, such as abnormalities in brain function. However, avoid using abnormal to describe a person.

-Avoid referring to someone who does not have a disability as a “normal person” as it implies that people living with disabilities are deviant or strange. “Typical” is a better choice.

-Be cautious when using the term “abnormal behavior.” Explain what it means in the context in which it is being used.

AP style: Not addressed


Background: Addiction is a neurobiological disease, according to the American Academy of Pain Medicine. Its development is influenced by environmental, cognitive and genetic factors. Addiction can be characterized by “impaired control over drug use, compulsive use, continued use despite harm and/or craving.” Addiction often implies dependence on substances other than alcohol, although alcoholism is essentially alcohol addiction.

The American Psychiatric Association recommends avoiding the term addict (and alcoholic), suggesting instead the phrase “someone experiencing a drug/alcohol problem.” The association also discourages using the term junkie, which specifically refers to someone who misuses heroin.

According to the U.S. Department of Health and Human Services’ Center for Substance Abuse Treatment, the term addiction is acceptable for uncontrollable, compulsive use of substances as well as acts such as gambling, sex, working, etc., in the face of negative health and social consequences. The center states that addiction differs from dependence in that dependence only accounts for health problems, whereas addiction denotes use, despite health and social problems (this same distinction applies to alcohol dependence and alcoholism). The center also recommends using the word misuse in place of abuse when describing harmful drug usage.

Avoid the terms clean and dirty concerning drug test results, according to the Center for Substance Abuse and Treatment. The terms are considered derogatory because they equate symptoms of illness to filth. When referring to a drug test, state that the person “tested positive for (drug).”

NCDJ Recommendation: It is preferable to refer to someone who harmfully uses drugs as “someone with a drug addiction.” Use recovering or “in recovery from” to refer to someone trying to overcome active addiction, i.e. “someone recovering from a methamphetamine addiction.”

AP style: Not addressed

Afflicted with/stricken with/suffers from/victim of

Background: These terms carry the assumption that a person with a disability is suffering or has a reduced quality of life. Not every person with a disability suffers, is a victim or is stricken.

NCDJ Recommendation: It is preferable to use neutral language when describing a person who has a disability, simply stating the facts about the nature of the disability. For example: “He has muscular dystrophy” or “he is living with muscular dystrophy.”

AP style: Conforms to AP style that suggests avoiding “descriptions that connote pity”


Background: An alcoholic is someone who has the disease of alcoholism. Alcoholism is characterized by a loss of control in alcohol use, according to the American Psychiatric Association. The Center for Substance Abuse Treatment recommends using people-first language such as “someone with alcoholism” or “someone with an alcohol problem.”

NCDJ Recommendation: Refer to someone who harmfully uses alcohol as “someone with an alcohol problem,” “someone living with an alcohol problem,” or “someone with alcoholism.” Use recovering to refer to someone with the disease of addiction, as in “someone recovering from alcoholism.”

Conforms to AP style

Alcoholics Anonymous

Background: Alcoholics Anonymous was founded in 1935 by Bill W. and Dr. Bob S. in Akron, Ohio, according to the AA General Service Office. AA is “a fellowship of men and women who share their experience, strength and hope with each other that they may solve their common problem and help others to recover from alcoholism,” according to the group’s preamble. AA members do not pay dues or fees; rather, it is supported through contributions. AA is unaffiliated with any outside organizations or institutions and does not endorse, finance or oppose any causes. The AA program is focused on 12 steps people take to achieve sobriety.

NCDJ Recommendation: Because anonymity is central to the organization, disclose that someone as a member of Alcoholics Anonymous only if it is essential to the story. When covering AA, consider referring to members by their first name only unless official references or context requires otherwise. These same considerations apply when covering other 12-step programs, such as Narcotics Anonymous or Gamblers Anonymous.

AP style: AA is acceptable on second reference.

Alzheimer’s disease

Background: The Cleveland Clinic defines Alzheimer’s disease as “a progressive and fatal disease in which nerve cells in the brain degenerate and brain matter shrinks, resulting in impaired thinking, behavior and memory.” The Alzheimer’s Association identifies it as the most common form of dementia. Symptoms include disorientation, mood and behavior changes, and confusion. The disease is named after German neurologist Alois Alzheimer, who first identified the disease.

NCDJ Recommendation: The proper term is Alzheimer’s disease, never Alzheimer’s. Disclose that an individual has Alzheimer’s disease only if it is relevant* to the story and if the person has been formally diagnosed by a licensed medical professional. Refer to the subject as “someone who has Alzheimer’s disease” or “someone who is living with Alzheimer’s disease” rather than using “suffers from” or “afflicted with.” See entry on dementia for further details.

Conforms to AP style 

Americans with Disabilities Act (ADA)

Background: The Americans with Disabilities Act is federal civil rights legislation that was created in 1990 to address discrimination on the basis of disability in employment, public accommodations, transportation and telecommunications as well as state and local government services. The ADA home page is located at:

NCDJ Recommendation: Use Americans with Disabilities Act on first reference; ADA is acceptable on second reference.

AP style: Not addressed

American Sign Language (ASL)/Signer/Interpreter

Background: American Sign Language is a complete language that utilizes “signs made by moving the hands combined with facial expressions and postures of the body,” according to the National Institute on Deafness and Other Communication Disorders. Many people in North America who are deaf or hard of hearing use it as a primary means of communication.

The terms “signer” and “interpreter” are often used interchangeably but mean different things. A signer is “a person who may be able to communicate conversationally with deaf persons but who may not necessarily possess the skills and expertise to accurately interpret complex dialogue or information,” according to the Massachusetts Department of Health and Human Resources. “To become an interpreter, an individual must not only display bilingual and bicultural proficiency, but also have the ability to mediate meanings across languages and cultures, both simultaneously and consecutively. This takes years of intensive practice and professional training.”

NCDJ Recommendation: Specify American Sign Language on first reference, capitalizing all three words. ASL is acceptable on second reference. Use “interpreter” only for those who have completed advanced training. The Registry of Interpreters for the Deaf has a searchable data base of registered interpreters.

AP style: Not addressed


Background: Amputation refers to the removal of a bodily extremity, usually during a surgical operation, for a variety of reasons. Amputee is the acceptable term for someone who has undergone an amputation. Some people have a physical deformity that is not a result of an amputation.

NCDJ Recommendation: “Someone with an amputation” or amputee are both acceptable.

AP style: Not addressed

Asperger’s syndrome

Background: The diagnosis of “Asperger’s syndrome” was removed from the American Psychiatric Association’s Diagnostic and Statistical Manual of Mental Disorders in 2012, according to New Scientist. While some patients prefer the label of Asperger’s, perceiving it to carry less stigma, the Autistic Self Advocacy Network supports its reference as an autism spectrum disorder. Note the S in syndrome is not capitalized.

NCDJ Recommendation: Ask people if they prefer their condition to be referred to as a form of autism or if they prefer the term Asperger’s disorder or Asperger’s syndrome. For more information, reference the autism/autism spectrum disorder entry.

Conforms to AP style

Attention-deficit disorder (ADD)/attention-deficit hyperactivity disorder (ADHD)

BackgroundADD and ADHD refer to attention-deficit disorder and attention-deficit hyperactivity disorder, respectively. Both are common mental disorders that manifest primarily in children, according to the National Institute of Mental Health. Common symptoms for both disorders include restlessness, difficulty in focusing or staying organized, and impulsivity. Those with an ADHD diagnosis also exhibit a difficulty in sitting still or engaging in quiet activities. Some debate exists as to the accuracy of an ADHD or ADD diagnosis as an actual disorder.

NCDJ Recommendation: Refer to someone as having attention-deficit disorder or attention-deficit hyperactivity disorder only if the information is relevant* to the story and if a licensed medical professional has formally diagnosed the person. Use “attention-deficit disorder” or “attention-deficit hyperactivity disorder” upon first reference; ADD and ADHD are acceptable for each disorder on second reference, respectively.

AP style: Not addressed

Autism/autism spectrum disorder

Background: Autism spectrum disorder is a group of complex disorders related to brain development. Common symptoms of autism spectrum disorder include difficulties in communication, impaired social interaction and restricted and repetitive patterns of behavior, interests or activities, according to the National Institute of Mental Health. However, symptoms vary across the spectrum. Some experts classify autism as a developmental disorder rather than a mental illness.

Prior to 2013, subtypes of autism such as Asperger’s syndrome, autism disorder and childhood disintegrative disorder were classified as distinct disorders. The fifth edition of the American Psychiatric Association’s Diagnostic and Statistical Manual of Mental Disorders consolidates all autism disorders under the larger autism spectrum disorder diagnosis.

Opinions vary on how to refer to someone with autism. Some people with autism prefer being referred to as an “autistic person;” others object to using autistic as an adjective. The Autistic Self Advocacy Network details this debate here.

NCDJ Recommendation: Refer to someone as having autistic spectrum disorder only if the information is relevant* to the story and if a licensed medical professional has formally diagnosed the person. Ask individuals how they prefer to be described. Many prefer to be described as autistic, while others prefer to be described as “an autistic person” or a person with autism.

AP style: The stylebook states that it’s acceptable to use the word autism as “an umbrella term for a group of developmental disorders.” However, it does not address how to refer to someone with autism.

Bipolar disorder

Background: Bipolar disorder (formerly known as manic depression) is a mental illness believed to be caused by a combination of genetic factors and neurological functioning, according to the National Institute of Mental Health. It is characterized by unusually intense shifts in emotion, energy, behavior and activity levels in what are called “mood episodes.” Such episodes are usually classified as manic, hypomanic, depressive or mixed episodes. Bipolar disorder often develops during late adolescence or early adulthood.

NCDJ Recommendation: Refer to someone as having bipolar disorder only if the information is central to the story and a licensed medical professional has formally diagnosed the person. Do not use bipolar as an adjective for something that rapidly or drastically changes. See also the entry on depression.

AP style: Not addressed

Birth defect

See entry on defect.

Blind/limited vision/low vision/partially sighted/visually impaired

Background: According to the American Foundation for the Blind, the term legally blind denotes a person with 20/200 visual acuity or less. Therefore, blind or legally blind is acceptable for people with almost complete vision loss. Many people with vision loss are not considered blind. The foundation recommends that unless the person refers to himself or herself as legally blind, the terms low vision, limited vision or visually impaired should be used.

NCDJ Recommendation: Use the term blind only when the person has complete loss of sight and the term legally blind when the person has almost complete loss of sight. Other terms also may be acceptable. It is best to ask the person which term he or she prefers and take that into consideration. Commonly used terms include:

Limited vision: Acceptable when a person is not legally or completely blind

Low vision: Acceptable when a person is not legally or completely blind

Partially sighted: Used most often in British publications but acceptable if a person is not legally or completely blind

Visually impaired: This is general term describes a wide range of visual functions, from low vision to total blindness. It is generally considered acceptable, although, like the term hearing impaired, some may object to it because it describes the condition in terms of a deficiency.

AP style: The AP stylebook describes blind as “a person with complete loss of sight” and suggests using the terms “visually impaired” or “person with low vision” for those who have some sight.


Background: A caregiver is an individual who assists another, including a person  with a disability, with his or her  daily life, according to Merriam-Webster. While caregiver and caretaker are often used interchangeably, they imply something different. As retired clinical psychologist and disability advocate Katherine Schneider notes, “You take care of property… to people you give care.” The Alzheimer’s Reading Room makes a similar point, recommending the exclusive use of “caregiver.”

NCDJ Recommendation: Caregiver is preferable to caretaker when referring to the care of people.

AP style: Not addressed


Background: Catatonia is a state in which a person does not move and does not respond to others. According to the National Institute of Health, it is a rare condition that may be associated with other disorders, such as schizophrenia. It is often used informally to describe someone who is in a stupor-like condition.

NCDJ Recommendation: Refer to someone as catatonic only if it is part of a medical diagnosis. Avoid using it casually as it may be offensive and inaccurate.

AP style: Not addressed

Cerebral palsy

Background: Cerebral palsy refers to a number of neurological disorders that appear in infancy or early childhood and permanently affect body movement and muscle coordination, according to the National Institute of Neurological Disorders and Stroke. It is not caused by problems in the muscles or nerves but by abnormalities in parts of the brain that control muscle movement. People with cerebral palsy can exhibit a variety of symptoms.

NCDJ Recommendation: It is acceptable to describe a person as “someone with cerebral palsy” or “someone living with cerebral palsy,” followed by a short explanation of what the condition entails. When describing specific symptoms, it is always best to ask the person what terms he or she prefers.

Spastic/spaz: Spastic cerebral palsy is a common type of cerebral palsy in which the movements of people with the disorder appear stiff and jerky. It is acceptable to refer to someone as having spastic cerebral palsy, but it is derogatory to refer to someone as spastic or a spaz.

AP style: Not addressed

Cochlear implant

Background: A cochlear implant is an electronic device that can help a person who is deaf or hard of hearing. The device does not fully restore hearing, but it gives a representation of sounds to help a person understand speech. The device has been criticized by some in the Deaf community who are concerned the device could threaten Deaf culture. However, advocates support the device for suitable candidates.

NCDJ Recommendation: When referring to a cochlear implant, avoid describing it as a corrective device or one that would restore a deaf person to mainstream society. Instead, define it as an electronic device that can assist a person who is deaf or hard of hearing in understanding speech.

AP style: Not addressed

Congenital disability

Background: A person who has a congenital disability has had a disability since birth. Common congenital disabilities include Down syndrome and heart-related medical conditions.

NCDJ Recommendation: It is preferable to state that someone is “a person with a congenital disability,” “a person living with a congenital disability,” “has had a disability since birth,” or “was born with a disability.” Name the specific disability only when it’s pertinent to the story. Avoid the terms defect, birth or defective when describing a disability because they imply the person is somehow incomplete or sub-par.

AP style: Not addressed

Crazy, loony, mad, psycho

Background: These words are used in a variety of contexts but are considered derogatory when applied to a person or people with mental illness.

NCDJ Recommendation: Avoid these words when reporting on mental illness unless they are part of a quote that is essential to the story. Also see entry for “Insane/mentally deranged.”

Conforms to AP style


Background:  Some people living with mild or moderate hearing loss may affiliate themselves with the Deaf community and prefer the term deaf instead of hard of hearing.  Alternatively, some who are deaf and don’t have a cultural affiliation to the Deaf community may prefer the term hard of hearing.

Deaf and hard of hearing became the official terms recommended by the World Federation of the Deaf in 1991. Many people in the Deaf community prefer use of a lowercase “d” to refer to audiological status and the use of a capital “D” when referring to the culture and community of Deaf people. The National Association of the Deaf has not taken a definitive stand on this issue.

NCDJ Recommendation: Lowercase when referring to a hearing-loss condition or to a deaf person who prefers lowercase. Capitalize for those who identify as members of the Deaf community or when they capitalize Deaf when describing themselves. Deaf should be used as an adjective not as a noun; it describes a person with profound or complete hearing loss. Other acceptable phrases include “woman who is deaf” or “boy who is hard of hearing.” When quoting or paraphrasing a person who has signed their responses, it’s appropriate on first reference to indicate that the responses were signed. It’s acceptable to use the word “said” in subsequent references.

AP style: The stylebook uses deaf to describe a person with total hearing loss and partially deaf or partial hearing for others. It calls for use of a lower case “d” in all usages.


Background: Indicates a person has some loss of vision and hearing.

NCDJ Recommendation: Use the terms the person prefers.

AP style: Not addressed

Deaf and dumb/deaf-mute

Background: Dumb was once widely used to describe a person who could not speak and implied the person was incapable of expressing himself or herself. Deaf-mute was used to refer to people who could neither speak nor hear. People living with speech and hearing disabilities are capable of expressing themselves in writing, through sign language and in other ways. Additionally, a person who does not use speech may be able to hear.

NCDJ Recommendation: Avoid these terms as they are often used inaccurately and can be offensive.

Conforms to AP style

Defect/birth defect

Background: A defect is defined as an imperfection or shortcoming. A birth defect is a physical or biochemical abnormality that is present at birth. Many people consider such terms offensive when describing a disability as they imply the person is deficient or inferior to others.

NCDJ Recommendation: Avoid using defect or defective when describing a disability. Instead, state the nature of the disability or injury.

AP style: Not addressed


Background: A deformity is a condition in which part of the body does not have the normal or expected shape, according to Merriam-Webster Dictionary. Physical deformities can arise from a number of causes, including genetic mutations, various disorders, amputations and complications in utero or at birth. However, the word deformity has a negative connotation that many object to when used in reference to those living with disabilities.

NCDJ Recommendation: Avoid using deformed as an adjective to describe a personDeformity can be used in some contexts, such as a deformed limb, although it’s preferable to describe the specific disability or cause.

AP style: AP medical stories tend to refer to a deformity or deformities rather than describing an individual as deformed.


Background: Dementia is “a general term for a decline in mental ability severe enough to interfere with daily life,” according to the Alzheimer’s Association. Dementia is not a specific illness; it is a term that refers to a wide range of symptoms. Alzheimer’s disease is the most common form of dementia. Other types of dementia include Creutzfeldt-Jakob disease, Huntington’s disease, Parkinson’s disease and Wernicke-Korsakoff syndrome (previously known as “wet brain”).

Common symptoms across forms of dementia include memory loss, difficulty in performing complex tasks, communication difficulties, personality changes and paranoia, according to the Mayo Clinic. In addition to their cognitive component, many types of dementia include physical symptoms as well, such as the abnormal eye movements of Huntington’s disease or the tremors associated with Parkinson’s disease. recommends avoiding the terms demented, dementing, dements, senile, or senility to refer to someone with dementia. The terms senility and senile denote conditions brought on by aging and often are used incorrectly to denote dementia.

NCDJ Recommendation: Refer to someone as having dementia only if the information is relevant* to the story and a licensed medical professional has formally diagnosed the person. Use people-first language when describing someone with dementia, such as “a person with dementia” or “a person living with dementia.” Avoid describing someone as being demented or senile.

When possible, reference the specific disease, such as “someone with Huntington’s disease” or “someone living with Huntington’s disease.” When referencing Huntington’s disease or Parkinson’s disease, do not shorten to Huntington’s or “Parkinson’s.”

AP style: Not addressed


Background: Depression is characterized by a loss of interest in activities, persistent fatigue, difficulty in concentrating and making decisions, persistent feelings of emptiness or hopelessness and abnormal eating habits, according to the National Institute of Mental Health. Its proper name is major depressive disorder. Related diagnoses include seasonal affective disorder (characterized by the “onset of depression during the winter months”), psychotic depression (a combination of psychosis and depression), and postpartum depression (sometimes experienced by mothers after giving birth).

NCDJ Recommendation: Refer to someone as having depression only if the information is relevant* to the story and if the person has been formally diagnosed by a licensed medical professional. Specify the type of disorder if it is known. The terms depressed, depressing, and depressive are acceptable in other contexts when the person being referenced does not have a medically diagnosed condition. See also bipolar disorder.

AP style: Not addressed 

Developmental disabilities

Background: The Centers for Disease Control defines developmental disabilities as “a group of conditions [that arise] due to an impairment in physical, learning, language or behavior areas. These conditions begin during the developmental period of life, may impact day-to-day functioning and usually last throughout a person’s lifetime.” Developmental disabilities usually manifest before age 22, and those living with such disabilities often require lifelong or extended individual support. Examples of developmental disabilities include autism spectrum disorder, cerebral palsy, hearing disabilities, intellectual disabilities and visual disabilities. Legal definitions vary from state to state.

NCDJ Recommendation: While it is acceptable to use the term developmental disabilities, it is preferable to use the name of the specific disability whenever possible.

AP style: Not addressed


Background: Disability and disabled generally describe functional limitations that affect one or more of the major life activities, including walking, lifting, learning, breathing, etc. Various laws define disability differently.

NCDJ Recommendation: When describing an individual, do not reference his or her disability unless it is clearly pertinent to the story. If it is pertinent, it is best to use language that refers to the person first and the disability second. For example: “The writer, who has a disability” as opposed to “the disabled writer.” When possible, refer to a person’s specific condition.

Disability and people who have disabilities are not monolithic. Avoid referring to “the disabled” in the same way that you would avoid referring to “the Asians,” “the Jews” or “the African-Americans.” Instead, consider using such terms as “the disability community” or “the disability activist.”

Conforms to AP style

Disabled People

Background: This is known as identity-first language (in contrast to people-first language). It is the preferred terminology in Great Britain and by a growing number of U.S. disability activists. Syracuse University’s Disability Cultural Center says, “The basic reason behind members of [some disability] groups’ dislike for the application of people-first language to themselves is that they consider their disabilities to be inseparable parts of who they are.” They embrace the terms autistic or Deaf or blind or disabled as their identity.

Several U.S. disability groups have always used identity-first terms, specifically the culturally Deaf community and the autistic rights community. An example of identity-first language: autistic woman instead of woman with autism.

[See the people with disabilities entry for more on people-first language.]

NCDJ Recommendation: Ask the disabled person or disability organizational spokesperson about their preferred terminology.

AP Style: Not addressed

Dissociative identity disorder/multiple personality disorder

Background: Dissociative identity disorder is characterized by the emergence of two or more distinct personality states or identities in a person’s behavior or consciousness, according to the National Alliance on Mental Illness. These personalities, medically known as alters, can exhibit different speech patterns, mannerism, attitudes, thoughts, gender identities and even physical characteristics. Other symptoms include memory problems, emotional issues, disorientation and the development of other mental disorders.

NCDJ Recommendation: Refer to someone as having dissociative identity disorder only if the information is relevant* to the story and if the person has been formally diagnosed by a licensed medical professional. Use the term dissociative identity disorder, not multiple personality disorder, and avoid the acronym DID. Use people-first language, such as “a person with dissociative identity disorder” or “a person living with dissociative identity disorder.”

AP style: Not addressed

Down syndrome

Background: Down syndrome is a congenital condition (i.e. a condition existing at or before birth that may have a genetic or environmental cause). Down syndrome is caused by the presence of an extra full or partial copy of chromosome 21 in an individual’s cell nuclei. It was first reported in 1866 by Dr. John Langdon Down and is characterized by a number of physical and cognitive symptoms, which the National Institutes of Health details here.

Other terms commonly used to refer to people living with Down syndrome are intellectually disabled, developmentally disabled or a person who has a cognitive disability or intellectual disability. The Global Down Syndrome Foundation considers all of these terms acceptable, while the National Down Syndrome Society suggests using cognitive disability or intellectual disability.

NCDJ Recommendation: The proper term for the disorder is Down syndrome, not Down’s syndrome or Down’s Syndrome. Use people-first language, stating that someone “is a person with Down syndrome,” “has Down syndrome,” or “is living with down syndrome.” Avoid using terms such as “suffers from” or “afflicted with” in association with the condition.

The terms intellectually disabled, developmentally disabled, cognitive disability and intellectual disability are acceptable when used in a people-first context to describe someone with Down syndrome, such as “the person has a developmental disability” or is “living with a developmental disability.” However, it is more accurate to refer specifically to Down syndrome when that is the medically diagnosed condition.

Conforms to AP style

Dwarf/little person/midget/short stature

Background: Dwarfism is a medical or genetic condition that results in a stature below 4’10,” according to Little People of America. The average height of a dwarf is 4’0.” When used in a non-medical sense, it can be considered offensive, but many view it as the acceptable term for the condition.

The term midget was used in the past to describe an unusually short and proportionate person. It is now widely considered derogatory.

The terms little people and little person refer to people of short stature and have come into common use since the founding of the Little People of America organization in 1957. The appropriateness of the terms is disputed by those within and outside of the organization. Little People of America recommends using the descriptors short stature, little person or “someone with dwarfism.”

NCDJ Recommendation: Only refer to a person’s short stature if it is relevant* to the story. It is best to ask people which term they prefer to describe them. Avoid the term dwarf unless it is being used in a quote or in a medical diagnosis. Avoid using the terms vertically challenged and midget.

AP style: Dwarf is the “preferred term for people with a medical or genetic condition resulting in short stature.” Midget is considered offensive.


Background: Dyslexia is a learning disability characterized by problems identifying speech sounds and learning how to connect them to letters and words, according to the Mayo Clinic. Its chief symptoms include difficulties with spelling, reading, pronunciation of words and processing auditory information. It is a common learning disability among children, although adolescents and adults living with dyslexia often exhibit symptoms as well.

The term dyslexic is used by some organizations as a noun and adjective in a non-pejorative way; however, using the word as a noun (describing a person as a dyslexic) appears to be falling out of use.

NCDJ Recommendation: Refer to someone as having dyslexia only if the information is relevant* to the story and if the person has been formally diagnosed by a licensed medical professional. Use people-first language, stating that someone has  dyslexia or is living with dyslexia, rather than referring to him or her as “a dyslexic person.” Avoid using dyslexic as a noun (i.e. “She is a dyslexic.”).

AP style: Not addressed 

Epilepsy/epileptic fit

Background: Epilepsy is a chronic neurological and developmental disorder characterized by “recurrent, unprovoked seizures,” according to the Epilepsy Foundation, which also states that it is the fourth most common neurological disorder. Epilepsy manifests differently in individuals: The severity of epileptic seizures, their occurrence rates and the emergence of other health problems differ from person to person. Epilepsy is most commonly treated with medication but also can include use of medical devices, surgery, diet and emerging therapy methods.

NCDJ Recommendation: Refer to someone as having epilepsy only if the information is relevant* to the story and if the person has been formally diagnosed by a licensed medical professional. Use people-first language, stating that someone has epilepsy, is living with epilepsy or has been diagnosed with epilepsy rather than referring to him or her as an epileptic.

The term seizure is the preferred term when referring to the brief manifestation of symptoms common among those with epilepsy. Avoid stating that the person had a fit or an epileptic fit.

AP style: Not addressed

Facilitated Communication

Background: Facilitated communication is a now-widely criticized communication technique that was popular in the 1990s in American schools, according to an article in the American Academy of Pediatrics. The technique was originally developed to help those living with severe, developmental disabilities such as autism. A nonverbal person would theoretically communicate with the help of a facilitator by typing on a keyboard, pointing to an image, or pointing to letters on an alphabet board. However, studies eventually found there was little scientific evidence to support that the technique actually worked, leading many to conclude the aid was actually the one communicating, according to a study from Emory University.

In an official position statement, the American Speech-Language-Hearing Association warns that any messages extracted from facilitated communication “should not form the sole basis for making any diagnostic or treatment decisions.” Other organizations, including  the American Psychological Association and the International Society for Augmentive and Alternative Communication also oppose facilitated communication.

NCDJ Recommendation: Avoid language that may legitimize facilitated communication. When writing about it, specify that major disability organizations do not recognize facilitated communication as a valid communication technique.  

AP style: Not addressed


Background: The Oxford English dictionary defines a handicap as “a condition that restricts a person’s ability to function physically, mentally or socially.”

NCDJ Recommendation: Do not describe a person as handicapped unless it is central to the story. Avoid using handicap and handicapped when describing a person. Instead, refer to the person’s specific condition. The terms are still widely used when citing laws, regulations, places or things, such as handicapped parking, although many prefer the term accessible parking.

Conforms to AP style

Hard of hearing

Background: The term may be used to refer to people who have a mild to moderate hearing loss that may or may not be corrected with amplification. Those who are hard of hearing usually use speech to communicate.

Deaf and hard of hearing became the official terms recommended by the World Federation of the Deaf in 1991. Many people in the Deaf community and organizations, including the National Association of the Deaf, support these terms.

Some people living with mild or moderate hearing loss may affiliate themselves with the Deaf community and prefer the term Deaf.  Alternatively, some who are deaf and don’t have a cultural affiliation to the Deaf community may prefer the term hard of hearing.  Additionally, hard of hearing may also refer to any hearing condition which can be helped by an auditory device, according to the University of Washington

Recommendation: Hard of hearing is almost always acceptable. However, use the term the person prefers.

AP style: Not addressed

Hearing impaired/hearing impairment

Background: The terms hearing impaired and hearing impairment are general terms used to describe people living with a range of hearing loss from partial to complete. The terms are disliked by many because, like the word handicap, hearing impaired describes a person in terms of a deficiency or what they cannot do. The World Federation of the Deaf has taken the stance that hearing impaired is no longer an acceptable term.

NCDJ Recommendation: For those with total hearing loss, deaf is acceptable. For others, partial hearing loss or partially deaf is preferred. It is best to ask the person which term he or she prefers.

AP style: The stylebook uses deaf to describe a person with total hearing loss. For others, it recommends using partial hearing loss or partially deaf. It does not address use of the term hearing impaired.


Background: High-functioning is a term commonly used to describe people who live with intellectual disabilities as a result of autism or Down syndrome. Someone with high-functioning autism has an IQ of 70 or above, according to Research Autism. There is still debate over whether high-functioning autism is synonymous with Asperger’s syndromeAutism Speaks notes that they “are often referred to as the same diagnosis.” “High-functioning Down syndrome” is not an official medical diagnosis.

Many people who live with Down syndrome and their families consider the terms to be dismissive or reductive of a person’s abilities. Journalists should consider other ways of describing a person’s ability to function in society. For example, they might say that an individual with Down syndrome lives with minimal or no special assistance.

NCDJ Recommendation: Avoid using the term highfunctioning in the context of developmental disabilities, unless it is describing a medical diagnosis in relation to autism.
AP style: Not addressed.

Infantile paralysis

Background: Infantile paralysis is short for poliomyelitis and was commonly used in the past to describe polio. Its symptoms include muscle weakness and paralysis. Jonas Salk introduced the polio vaccine in the 1950s and drastically reduced cases of polio in the U.S.

NCDJ Recommendation: Use the term polio rather than infantile paralysis. It is preferable to say “He had polio as a child” or “She contracted polio as an adult” rather than “He suffers from polio” or “He is a victim of polio.”

AP style: The preferred word is polio.


Background: The word injury is commonly used to describe any harm, damage or impairment to an individual as the result of an accident or other event.

NCDJ Recommendation: Refer to injuries as being sustained or received, not suffered, unless the person in question prefers “suffered.”

AP style: Not addressed

Insane/insanity/mentally deranged/psychopathology

Background: The terms insane, insanity and mentally deranged are commonly used informally to denote mental instability or mental illness but can be considered offensive. The medical profession favors use of the terms mental disorder or psychopathology. In U.S. criminal law, insanity is a legal question, not a medical one.

NCDJ Recommendation: Use mental illness or mental disorder instead of insane or mentally deranged, except in a quote or when referring to a criminal defense.

 Conforms to AP style

Insane asylum/mental health hospital/psychiatric hospital 

Background: Hospitals that cared for people with various mental illnesses, often for long periods of time, were once commonly referred to as insane asylums. The term has largely gone out of use as objectionable and inaccurate.

NCDJ Recommendation: Mental health hospital or psychiatric hospital are the preferred terms to describe medical facilities specifically devoted to treating people with mental disabilities.

Conforms to AP style

Intellectual disabilities/intellectually disabled

Background: An intellectual disability is a disability involving “significant limitations both in intellectual functioning (reasoning, learning, problem solving) and in adaptive behavior, which covers a range of everyday social and practical skills,” according to the American Association on Intellectual and Developmental Disabilities. Those with IQ test scores of 75 or lower are considered to have an intellectual disability. Intellectual disabilities typically develop in individuals before the age of 18. This contrasts with congenital disorders such as Down syndrome, which develop before or at birth.

NCDJ Recommendation: Use people-first language, stating that someone is “a person with an intellectual disability” or “a person living with an intellectual disability” rather than referring to the person as intellectually disabled.

AP style: Not addressed


Background: The Oxford English dictionary defines invalid as “a person made weak or disabled by illness or injury.” It is probably the oldest term for someone living with physical conditions that are considered seriously limiting. However, it is such a general term that it fails to accurately describe a person’s condition and is now widely viewed as offensive in that it implies that a person lacks abilities.

NCDJ Recommendation: Avoid using invalid to describe a person living with a disability except when quoting someone.

AP style: Not addressed

Invisible Disabilities 

Background: The majority of disabled people have disabilities or chronic illnesses that are invisible or hidden. Although many in the general public associate disability only with people using wheelchairs or white canes or who are missing limbs, more people have conditions that can’t be seen but are defined as disabilities under the 1990 Americans with Disabilities Act.

For example, more than 40 million Americans have hearing difficulties, but most do not use sign language, and many do not use hearing aids. Mental health conditions are a prevalent invisibledisability. More than 43 million U.S. adults over 18 have some form of mental illness, according to the National Institute on Mental Health. Many chronic health conditions are also considered invisibledisabilities depending on their severity and impact on daily living. Chronic illnesses such as Parkinson’s disease, diabetes, lupus, or Crohn’s disease may fall into the category of invisible disabilities. Research from Cornell University’s Employment and DisabilityInstitute reports that between 2005 and 2010 the most prevalent conditions of people filing employment disability discrimination charges with the Equal Employment Opportunity Commission (EEOC) were invisible disabilities.

NCDJ recommendation: Do not use the term invisible disability without asking the person being discussed or interviewed in the story. Many people with chronic illnesses do not call themselves disabled. If preference is unknown, specify the condition, e.g. Jane Doe, who was diagnosed with lupus in 2010.

AP style: Not addressed


Background: Lame is a word commonly used to describe difficulty walking as the result of an injury to the leg.

Some people object to the use of the word lame to describe a physical condition because it is used in colloquial English as a synonym for weak, as in “That’s a lame excuse.”

NCDJ Recommendation: Avoid using lame to describe a person living with a disability except when quoting someone.

AP style: Not addressed

Little person/little people              

See “Dwarf, little person/people/midget/short stature” 

Mental illness/mental disorder

Background: Mental illness is an umbrella term for many different conditions that affect how individuals act, think, feel or perceive the world. Mental illnesses also are known as mental disorders. The most common forms of mental illness are anxiety disordersmood disorders, and schizophrenia disorders. One in four adults experiences mental illness in a given year, according to the National Alliance on Mental Illness, although severity and symptoms vary widely. For more information on mental illness, see the National Institute for Mental Health.

Because of perceived stigma, some people are calling for an end to the use of the term mental illness, suggesting instead terms such as “person diagnosed with a psychiatric disorder” or “person with a mental health history.” However, the term is still widely used within the medical and psychiatric professions.

The American Psychiatric Association offers a useful guide to media on use of appropriate terms. The association recommends using people-first language to describe mental illness in order to avoid defining a person by his or her disability. “She experiences symptoms of psychosis” is preferable to “She is psychotic;” “He is living with bipolar disorder” is preferable to “He is bipolar;” and “She has autism” is preferable to “She is autistic.”

NCDJ Recommendation: Refer to an individual’s mental illness only when it is relevant* to the story and the diagnosis comes from a proper source. Whenever possible, specify the specific illness a person has rather than mental illness in general. Always refer to someone living with a mental illness as a person first. Use quotes when officials or family members use a term such as “a history of mental illness” to refer to an individual and indicate when appropriate that the diagnosis has not been confirmed. .

Conforms to AP style: The stylebook cautions against describing an individual as mentally ill unless clearly pertinent to a story and the diagnosis is properly sourced. Specific disorders should be used and the source of the diagnosis identified whenever possible.

The Associated Press also warns again drawing a connection between mental illness and violent crime and recommends that any source used to characterize a criminal suspect’s mental health history have the authority to speak on the matter. And it cautions against “using mental health terms to describe non-health issues. Don’t say that an awards show, for example, was schizophrenic.”

Mental health professionals/shrink

Background: There are a number of types of mental health professionals. The following broad definitions are sourced from Psychology Today.

Psychiatrist: A mental health professional able to prescribe psychotropic medications. Some provide emotional therapy as well as medication management.

Psychoanalyst: A specific type of psychotherapist trained to work with both an individual’s unconscious and unconscious mind. The field was founded by Sigmund Freud.

Psychologist: A mental health professional trained in the discipline of psychology and who often does psychological testing and research.

Psychotherapist: An umbrella term for mental health professionals trained to treat people for their health problems.

NCDJ Recommendation: Ask the professional how he or should be identified, based on his or her formal training. Avoid using the word shrink in reference a mental health professional except in a quote.

AP style: Not addressed

Mentally retarded, mentally disabled, intellectually disabled, developmentally disabled

Background: The terms mentally retarded, retard and mental retardation were once common terms that are now considered outdated and offensive. In 2010, President Barack Obama signed a measure known as “Rosa’s Law” that replaced the term mental retardation with intellectual disability in many areas of government, including federal law. 

NCDJ Recommendation: Always try to specify the type of disability being referenced. Otherwise, the terms mental disability, intellectual disability and developmental disability are acceptable. Use people-first language. For example, instead of using “the mentally disabled” as a collective noun, use “people with mental disabilities” or “people living with mental disabilities.”

At times, words that are considered outdated may be appropriate because of the story’s historical context. In those cases, attribute the term or note its historic use. For example, “The doctor said he was retarded, a term widely used at the time.”

AP style: Mentally retarded should be avoided. The AP Stylebook suggests using terms such as mentally disabled, intellectually disabled and developmentally disabled. The NCDJ prefers “a person living with a mental disability” rather than “a mentally disabled person.”


                  See entry on Dwarf, little person/midget/short stature


Background: The term was used in the late 19th century to refer to people who had Down syndrome, due to the similarity of some of the physical characteristics of the disorder to Eastern Asian people who were called Mongoloid, according to the Oxford English dictionary. It is considered a highly derogatory word to describe someone with Down syndrome.

NCDJ Recommendation: Always avoid the use of Mongoloid to refer to someone living with Down syndrome. See the entry for Down syndrome.

AP style: Not addressed

Multiple personality disorder

See entry on Dissociative identity disorder

Multiple sclerosis (MS)

Background: Multiple sclerosis, or MS, is a disease of the central nervous system that disrupts the flow of information within the brain and between the brain and body, according to the National Multiple Sclerosis Society. MS symptoms vary widely and may include trouble with walking or movement, numbness and vision problems.

NCDJ Recommendation: It is acceptable to describe a person as “someone with multiple sclerosis” or “living with multiple sclerosis,” followed by a short explanation of how the disease is manifested in that person. Avoid saying a person suffers from or is afflicted with the disease. MS is acceptable on second reference.

AP style: Not addressed

Muscular dystrophy (MD)

Background: Muscular dystrophy could refer to any of more than 30 genetic diseases characterized by progressive weakness and degeneration of the muscles that control movement, according to the National Institute of Neurological Disorders and Stroke. Onset could be infancy, childhood, middle age or later.

NCDJ Recommendation: It is acceptable to describe a person as “someone with muscular dystrophy” or “someone living with muscular dystrophy,” followed by a short explanation of what the condition entails. Avoid saying a person suffers from or is afflicted with the disease. MD is acceptable on second reference.

AP style: Not addressed


Background: Non-disabled has come into usage as a way to refer to someone who does not have a disability.

NCDJ Recommendation: Non-disabled or “does not have a disability” are acceptable terms when referring to people who do not identify as having a disability. In general, avoid using able-bodied.

AP style: Not addressed

Obsessive-compulsive disorder (OCD)

Background: Obsessive-compulsive disorder is an anxiety disorder characterized by unreasonable thoughts and fears that lead to repetitive and often ritualized behaviors or compulsions. OCD may exhibit as a fear of contamination, disarray or intrusion, according to the Mayo Clinic. People living with OCD usually exhibit both obsessions and compulsions but sometimes exhibit only one or the other. OCD is often treated by pharmaceutical drugs, psychotherapy methods or a combination of the two.

NCDJ Recommendation: Refer to someone as having OCD only if the information is relevant* to the story and the person has been formally diagnosed by a reputable source. Do not use OCD as an adjective for someone who obsesses over certain things but has not been formally diagnosed as having OCD. Use obsessive-compulsive disorder on first reference; OCD is acceptable in second reference.

AP style: Not addressed


Background: Paraplegia is defined as the impairment or loss of movement in the lower extremities and torso. It is typically caused by a spinal cord or brain injury. Referring to someone as a paraplegic is offensive to some as it implies that their condition defines them.

NCDJ Recommendation: Avoid referring to an individual as a paraplegic. Instead, say the person has paraplegiaSometimes people with paraplegia refer to themselves as a “para.” If so, use in quotes.

AP style: Not addressed

(Partial) hearing loss/partially deaf

Background: Hard of hearing is the most common term for those who have a mild to moderate hearing loss that may or may not be corrected with amplification.

NCDJ Recommendation: Ask the individual what term he or she prefers. Otherwise, hard of hearing is almost always acceptable.

AP style: The stylebook recommends using partial hearing loss or partially deaf for those who have some hearing loss.


Background: Members of the disability community argue that characterizing people with a disability as “sick” or referring to them as “patients” connotes that there is something unwell about them or that they are need of medical attention, when, in fact, that may not be the case.

NCDJ Recommendation: Avoid referring to someone with a disability as “sick” or to their disability as a “sickness.” If a person is receiving medical treatment, then the word “patient” is appropriate; however, it should be avoided outside of a medical context.

 AP Style: Not addressed

People with disabilities

Background:  This is known as people-first language (in contrast to identity-first language). Those who prefer people-first language say it avoids defining a person in term of his or her disability. In most cases, this entails placing the reference to the disability after a reference to a person, as in “a person with a disability” or “a person living with a disability” rather than “the disabled person.” The National Center on Birth Defects and Developmental Disabilities of the Centers for Disease Control & Prevention offers an easy-to-follow guide on people-first language.

[See the disabled people entry for more on identity-first language.]

NCDJ Recommendation: Ask the person with a disability or disability organizational spokesperson their preferred terminology.

AP style: Not addressed

Prelingually deaf/postlingually deaf/late-deafened 

Background: Prelingually deaf refers to individuals who were born deaf or became deaf prior to learning to understand and speak a language, according to Gallaudet University, a university for the education of the deaf and hard of hearing in Washington, D.C.

Postlingually deaf or late-deafened describes a person who lost hearing ability after he or she learned to speak a language. 

NCDJ Recommendation: The terms are acceptable, although explanation may be required for a general audience.

AP style: Not addressed

Post-traumatic stress disorder (PTSD)

Background: Post-traumatic stress disorder is an anxiety disorder generally caused by undergoing an extremely emotional traumatic event, according to the National Center for PTSD. Such events may include assault, war, sexual assault, natural disasters, car accidents or imprisonment. Symptoms may include reliving the traumatic event, avoidance of certain behaviors, negative emotions or physical symptoms such as dizziness or nausea.

NCDJ Recommendation: Refer to someone as having PTSD only if the information is relevant* to the story and the person has been formally diagnosed by a reputable source. Post-traumatic stress disorder is correct on first reference; use PTSD on second reference.

The term flashback may be used to denote reliving an event that triggered the PTSD.

AP style: Post-traumatic stress disorder is a type of mental illness. PTSD is acceptable on second reference.


Background: Psychosis is a broad term used to describe symptoms of certain mental health problems. Symptoms may include delusions or hallucinations or other loss of contact with reality. People with psychosis are described as psychotic. In common usage, psychotic often is used in the same way as the word crazy, and thus can be offensive and inaccurate.

NCDJ Recommendation: Use the words psychotic and psychosis only when they accurately describe a medical experience. Avoid using psychotic to describe a person; instead refer to a person as having a psychotic condition or psychosis. Avoid using the terms colloquially.

AP style: Not addressed


Background: Quadriplegia is defined as the partial or total loss of use of all four limbs and torso. It often is caused by a spinal cord or brain injury and is characterized by the loss of sensory and motor function. Paraplegia is similar but does not affect the arms. People living with these conditions often are referred to as quadriplegics and paraplegics, but these terms are considered offensive by some. May also be referred to as tetraplegia.

NCDJ Recommendation: Use people-first language, such as “a person with quadriplegia” or “a person living with quadriplegia” rather than quadriplegic, since this implies that the condition defines them. Sometimes people with quadriplegia refer to themselves as “quads.” If so, use in quotes.

AP style: Not addressed


See entry on mentally retarded, mentally disabled, intellectually disabled, developmentally disabled


Background: Schizophrenia is a severe and chronic mental illness characterized by distorted recognition and interpretations of reality, affecting how an individual thinks, feels and acts, according to the National Institute of Mental Health. Common symptoms include visual and auditory hallucinations, delusional and disordered thinking, unresponsiveness, a lack of pleasure in daily life and other social issues. It does not involve split personalities. Less than one percent of the general population has schizophrenia, and it is treated mostly through the use of pharmaceutical drugs.

NCDJ Recommendation: Refer to someone as having schizophrenia only if the information is relevant* to the story and if the person has been formally diagnosed by a licensed medical professional. Use people-first language, stating that someone is “a person with schizophrenia,” “a person living with schizophrenia” or “a person diagnosed with schizophrenia” rather than a schizophrenic or a schizophrenic person. Do not use the word schizophrenic colloquially as a synonym for something inconsistent or contradictory.

AP style: Schizophrenia is classified as a mental illness. The stylebook cautions against using mental health terms to describe non-health issues. “Don’t say that an awards show, for example, was schizophrenic.”


See entry for epilepsy

Service animal/assistance animal/guide dog/Seeing Eye dog  

Background: Service animals are trained animals, mostly dogs, which provide services to people with disabilities. They also are sometimes called “assistance animals,” “guide dogs,” or “Seeing Eye dogs.”

The federal definition of a “service animal” applies to “any guide dog, signal dog or other animal trained to do work or perform tasks for the benefit of an individual with a disability.” This may include animals that guide individuals living with impaired vision, alert individuals with impaired hearing to intruders or sounds, provide minimal protection or rescue work, pull a wheelchair or fetch dropped items. If they meet this definition, animals are considered service animals under the ADA, regardless of whether they have been licensed or certified. For more information, go to

NCDJ Recommendation: Service animal, assistance animal and guide dog all are acceptable. Avoid use of Seeing Eye dog as Seeing Eye is a registered trademark of The Seeing Eye school in Morristown, N.J. Be aware that the issue of licensure and/or certification of service animals is a contentious issue in the disability community, so it may be best to refer to the federal definition.

AP style: There is no entry for service animal. The stylebook notes the Seeing Eye dog trademark and suggests that guide dog be used instead.

Short stature 

See “Dwarf/little person/midget/short stature”


See cerebral palsy

Special/special needs/functional needs

Background: The term “special needs” was popularized in the U.S. during the early 20th century during a push for special needs education to serve people living with all kinds of disabilities.

The word “special” in relationship to those living with disabilities is now widely considered offensive because it euphemistically stigmatizes that which is different.

NCDJ Recommendation: Avoid using these terms when describing a person living with a disability or the programs designed to serve them, with the exception of government references or formal names of organizations and programs. It is more accurate to cite the specific disability or disabilities in question. The term “functional needs” is preferred when a term is required. For example, “addressing the functional needs of people living with disabilities” could be used when referring to a facility or program.

AP style: Not addressed

Spina bifida

Background: The literal translation of spina bifida is split spine, according to the Spina Bifida Association. The condition is a neural tube defect that occurs when the spinal column does not close all the way in the womb. It is the most common neural tube defect in the U.S. There are four types of spina bifida. For complete definitions, visit the Spina Bifida Association website. Complications from spina bifida range from minor physical problems to severe mental and physical disabilities.

NCDJ Recommendation: It is acceptable to describe a person as “someone with spina bifida” or “someone living with spina bifida,” followed by a short explanation of what their condition entails.

AP style: Not addressed


Background: Stuttering is a speech disorder characterized by repeated or prolonged words, sounds or syllables that affect the flow or fluency of speech, according to the National Institute on Deafness and Other Communication Disorders. Stuttering often is involuntary and can be accompanied by rapid blinking or lip tremors. Stuttering symptoms manifest in early childhood. While many children outgrow stuttering, a small percentage of adults stutter as well. The American Speech-Language-Hearing Association notes that most stuttering can be treated by behavioral therapies.

There is some ambiguity about the difference between stuttering and stammering and which term is appropriate in different contexts. However, organizations such as the NIDCD, Mayo Clinic and the National Stuttering Association generally use the term stuttering to refer to the speech disorder. The Diagnostic and Statistical Manual of Mental Disorders debuted the new term “childhood-onset fluency disorder” to refer to stuttering, along with a few new criteria for its diagnosis. However this term is not yet widely used.

NCDJ Recommendation: The word stuttering is preferred over stammering. Do not refer to an individual as a stutterer. Rather, use people-first language, such as “a person who stutters.” Refer to stuttering only if it is relevant* to the story.

AP style: Not addressed

Suffers from/victim of/afflicted with/stricken with

Background: These terms carry the assumption that a person with a disability is suffering or has a reduced quality of life. Not every person with a disability suffers, is a victim or is stricken.

NCDJ Recommendation: It is preferable to use neutral language when describing a person who has a disability, simply stating the facts about the nature of the disability. For example: “He has muscular dystrophy” or “he is living with muscular dystrophy.”

AP style: Conforms to AP style that suggests avoiding “descriptions that connote pity”


Background: Tetraplegia, used interchangeably with quadriplegia, is defined as the paralysis of all four limbs as well as the torso. It often is caused by a spinal cord or brain injury and is characterized by the loss of sensory and motor function. Paraplegia is similar but does not affect the arms. People with these conditions often are referred to as quadriplegics and paraplegics, but these terms are considered offensive by some. 

NCDJ Recommendation: Use people-first language, such as “a person with tetraplegia” rather than tetraplegic, since this implies that the condition defines them. See also quadriplegia.

AP style: Not addressed

Tourette syndrome/Tourette’s syndrome/Tourette’s disorder

Background: Tourette syndrome is a neurological disorder characterized by tics, or sudden, purposeless and rapid movements or vocalizations, according to the National Alliance on Mental Illness. Such tics are recurrent, involuntary and non-rhythmic, with the same tics occurring each time. The disorder was originally named for French neurologist Dr. Georges Gilles de la Tourette, who first described the condition in 1885, according to the National Institute of Neurological Disorders and Stroke.

While those living with Tourette syndrome often can suppress tics by focusing on them, the disorder also can be treated with medication, relaxation techniques and therapy. Although involuntary cursing is commonly thought to be a key trait of the disorder, only a minority of those with Tourette syndrome exhibits this symptom.

Terminology for the disorder is varied. It is interchangeably referred to as Tourette syndrome, Tourette’s syndrome and Tourette’s disorder. However, prominent mental health organizations such as NINDS, the Mayo Clinic, the Centers for Disease Control and Prevention, as well as the Tourette Syndrome Association refer to it as Tourette syndrome.

NCDJ Recommendation: Use Tourette syndrome, with no possessive or capitalization of syndrome. Refer to someone as having Tourette syndrome only if the information is relevant* to the story and if the person has been formally diagnosed by a licensed medical professional. Use people-first language, stating that someone is “a person with Tourette syndrome,” “a person living with Tourette syndrome” or “a person diagnosed with Tourette syndrome.” Avoid the acronym TS as it is not widely known.

AP style: Not addressed

Treatment/treatment center/rehab center/detox center

Background: Treatment is defined by the American Society of Addiction Medicine as the use of any planned, intentional intervention in the health, behavior, personal and/or family life of an individual living with alcoholism or another drug dependency designed to achieve and maintain sobriety, physical and mental health and maximum functional ability. A treatment center is an establishment usually run by psychiatric or medical professionals.

NCDJ Recommendation: Treatment is an acceptable term for medical interventions, and treatment center is acceptable for the establishment in which such practices take place. Use treatment center in place of rehab or detox center. A person enrolled in a treatment center should be referred to as a patient. 

AP style: Not addressed

Vegetative state/comatose/non-responsive

Background: A vegetative state is defined as the absence of responsiveness or consciousness in which a patient shows no awareness of his or her environment. Patients may exhibit eye movements and other involuntary movements. A minimally conscious state is one in which a patient has some awareness of self and/or the environment. Referring to a person in a vegetative state as a vegetable is considered offensive.

NCDJ Recommendation: It is preferable to use precise medical terminology or, if that is not possible, terms such as comatose or non-responsive. If using the term vegetative state, use people-first language, such as “a person in a vegetative state.” Avoid referring to someone as a vegetable or “veg” as such words dehumanize the person.

AP style: The stylebook allows the use of vegetative state, describing it as “a condition in which the eyes are open and can move, and the patient has periods of sleep and periods of wakefulness, but remains unconscious, unaware of self or others.”

Wheelchair/wheelchair-bound/confined to a wheelchair

Background: People who use mobility equipment such as a wheelchair, scooter or cane consider their equipment part of their personal space, according to the United Spinal Association. People who use wheelchairs have widely different disabilities and varying abilities.

NCDJ Recommendation: It is acceptable to describe a person as “someone who uses a wheelchair,” followed by an explanation of why the equipment is required. Avoid “confined to a wheelchair” or “wheelchair-bound” as these terms describe a person only in relationship to a piece of equipment. The terms also are misleading, as wheelchairs can liberate people, allowing them to move about, and they are inaccurate, as people who use wheelchairs are not permanently confined in them, but transfer to sleep, sit in chairs, drive cars, etc.

Conforms to AP style

*Relevant: In this guide, we urge reporters and other communications professionals to refer to a disability only when it’s relevant to the story being told. But what is “relevant” is not always clear. Should a story about residents complaining about noisy airplanes flying over their houses note that one of the residents who is complaining uses a wheelchair? Should someone who is blind be identified as such in a story about people who have been stranded while hiking and had to be rescued?

In the first case, we suggest the answer is “no.” The fact that someone uses a wheelchair does not make the airplane noise any more or less irritating. In the second case, the answer is “maybe.” If the hiker’s blindness contributed to him or her getting stranded, making note of that fact is relevant. If the person’s sight had nothing to do with the situation, leave it out.

When in doubt, ask the person involved. People living with disabilities often complain that their disability is mentioned even when the story has nothing to do with their disability.

CREDITS: This stylebook represents the combined efforts of Lily Altavena, Jason Axelrod, Richard J. Dalton, Jr., Jake Geller, Kristin Gilger, Lauren Loftus and Theresa Poulson, all associated with the National Center on Disability and Journalism at the Walter Cronkite School of Journalism and Mass Communication at Arizona State University.

SARC Summer Festival 2017

The Annual Summer Festivals are for the entire San Andreas Regional Center community. Parents, Individuals with developmental disabilities, the community, and service providers are all welcomed to attend.

Come join us for a family day full of fun and games to welcome the summer while coming together as a Special Needs Community. There will games, entertainment, prizes, food trucks, and much more. The entire Special Needs Community, family members, and service providers are invited to attend the 3rd Annual Summer Festivals.

Saturday, July 8th 
Tatum’s Garden, 1 Maryal Dr., Salinas
Saturday, July 15th
Harvey West Park, 300 Evergreen Street, Santa Cruz
Saturday, July 22nd 
Rotary Play Garden, 438 Coleman Ave., San Jose

The festival goes from 11:00 am to 3:00 pm at each location.

Service Providers are welcomed to be part of the Resource Fair taking place during the festival in Salinas. However, in order to participate during the resource fair, service providers must host a festival game.

Service Providers interested should sign up here and email their festival game idea to participate during the resource fair. Please email Francisco Valenzuela at: [email protected] your festival game to be added to the list of service providers who will be participating during the resource fair.


May 2017

Below is a list of the some of what the Bay Area Summer Camps can offer for families with children who have a I/DD.

Summer Camp

Summer Camp

Developmental & Learning Disabilities

Building Bridges Camp gives individuals who use Augmentative and Alternative Communication (AAC) and Assistive Technology (AT) an opportunity to develop their communication skills in a fun, motivating, no-pressure environment in Boulder Creek. Campers ages 5-17 attend a week-long residential camp experiencing swimming, horseback riding, and arts and crafts. Additionally, adults who want to learn more about working with AAC/AT can participate in the concurrent training institute.

The Bridge School
545 Eucalyptus Ave, Hillsborough
[email protected]

Camp Costanoan is Via Services’ residential, outdoor education, recreation and learning center for children and adults ages 5 and older with physical and/or developmental disabilities and special needs. Camp is located on 13 wooded acres nestled in the foothills of the Santa Cruz Mountains in Stevens Creek County Park, just 15 miles west of San Jose and 45 miles south of San Francisco.

2851 Park Ave, Santa Clara

Camp Krem serves children and adults who have Down syndrome, cerebral palsy, autism or other developmental disabilities in a traditional, residential camp in the Santa Cruz Mountains. Five to 12-day sessions offer activities that include daily swimming, arts, music, sports, cheerleading, dance, drama, nature hikes and field trips. Outdoor adventure and travel programs are also available. Camping Unlimited-Camp Krem sponsors many year-around weekend trips in the East Bay and South Bay areas. Bus service from Emeryville is available.

102 Brook Lane, Boulder Creek

Camp Ronald McDonald at Eagle Lake is a fully-accessible residential summer camp for children with a variety of special medical needs, economic hardship and/or emotional, developmental or physical disabilities. Because barriers are removed, campers enjoy traditional camping activities such as arts and crafts, hikes, fishing, canoeing, sports, swimming, talent shows and campfires.

Ronald McDonald House Charities Northern California

AbilityFirst Camp Paivika is a year-round program for children, teens and adults with physical and developmental disabilities. The program encourages independence and broadens social contacts through recreation.

600 Playground Drive, Crestline


March 2017

Home and Community Based Services (HCBS) Rule

Alice and Ian

Alice and Ian

According to the Centers for Medicare & Medicaid Services (CMS): The final rule addresses several sections of Medicaid law under which states may use federal Medicaid funds to pay for Home and Community-Based Services (HCBS). The rule supports enhanced quality in HCBS programs, adds protections for individuals receiving services. In addition, this rule reflects CMS’ intent to ensure that individuals receiving services and supports through Medicaid’s HCBS programs have full access to the benefits of community living and are able to receive services in the most integrated setting.

For information on the Home and Community Based Setting Rule Click Here

New Newsletter


Monthly News & Updates

May 2017


New LHA Affiliate Partner

Golden State Pooled Trust

LHA member, North Bay Housing Coalition, expanded its scope of services over 10 years ago to include the creation and management of the Golden State Pooled Trust (GSPT). We are lucky to work closely with Stephen W. Dale, Esq., a well-respected estate planning attorney. He acts as the trustee for GSPT.

Under Steve’s direction, GSPT is one of the top pooled trusts in California and we pride ourselves on being strong advocates for persons with disabilities in California. It’s a natural fit for GSPT to support LHA and its mission.

New Financing Tool!

Clearinghouse CDFI is proud and honored to be a partner with the housing developers who serve people with developmental disabilities that comprise the Lanterman Housing Alliance (“LHA”). We have been an ardent supporter of LHA organizations, and have witnessed the resultant impact your members have had on increasing housing opportunities for former residents of the State developmental centers. As the State will continue to close additional facilities, we are aware of the need for broader financing solutions that would assist LHA.developers with continuing to create group home settings for individuals with developmental disabilities.

Click here to read the entire letter.

Legacy Homes

Our partnership with GSPT is off to a great start. We are collaborating on our first attorney event with Steve Dale. We willoffer continuing legal education credits to participating attorneys. Kristin and Norma will teach a session on working with LHA’s non-profit housing members..

There will be two focus groups for attorneys and financial professionals–the first one will take place on June 7th in Los Angeles. We will send the flyer and RSVP invite later this week.

We have a tentative date for the family focus group in Southern California on July 6th. There will be morning and evening sessions. We will send the flyers once all the details are confirmed.

Stay tuned for information on the Northern California focus groups to take place this summer.

National Housing Trust Fund

Housing – Funding for States from National Housing Trust Fund Announced

Last week, the Department of Housing and Urban Development (HUD) announced the first-ever allocations from the National Housing Trust Fund (NHTF) to the states. The NHTF is a new, dedicated source of funding for affordable housing primarily for people with extremely low incomes, a group that includes many people with disabilities. The NHTF is funded by a very small assessment on the volume of business of Fannie Mae and Freddie Mac, the federal government sponsored enterprises. This funding stream started up for the first time in 2015 and the first-ever state allocations under the NHTF total $174 million for 2016.

State allocations are based on five factors related to the severity of the housing crisis faced by very low income and extremely low income households in the state. The 2016 state allocations range from $3 million (the minimum amount possible, by law) to $10.1 million (to California). States now must develop spending plans for their NHTF dollars. Now is the time for disability advocates to contact the agency in their state that is in charge of developing the state’s NHTF spending plan to ensure that the plans address the urgent needs of people with disabilities for affordable, accessible, integrated housing in the community. Extensive resources on the NHTF and how to get involved in NHTF advocacy in your state are available from the National Low Income Housing Coalition and from HUD.

Achieving a Better Life Experience (ABLE Accounts)

The recently passed ABLE Act has interesting possibilities for housing. In California, the Treasurer’s office is responsible to roll out the policies and procedures on creating ABLE accounts. DDS and SCDD are also involved in an advisory capacity.

LHA member, Mary Eble, joined Steve Dale, Tony Anderson, and others on a webinar about how the ABLE accounts can be used–including housing. A replay will be available soon. We will send a link to it.

The State of Ohio is leading the charge on ABLE Accounts implementation. Also, California residents can use their ABLE program. Please go to their website for more information:

LHA Housing Thought Leaders Fall 2016 Conference

Save the Date: October 4-5, 2016, Santa Barbara, CA

Silicon Valley Gives 2016

We’re passionate about creating affordable, quality housing for people with developmental disabilities so they can live life to their full potential!

Bay Area Housing Corporation owns and manages 37 special needs properties. Many of our residents are medically fragile and need constant care.

We believe they have the right to live in a warm home environment with as much dignity and self-determination as possible.

Why Do We Need Your Help?

We provide lovely, safe homes for so many who can’t take care of themselves–like twin girls who were born with severe developmental disabilities. Their mother cared for them at home until they were 10. She was brokenhearted when she finally had to place them into a care home. She never felt entirely secure with her daughters there, and they struggled with repeated bouts of pneumonia during that time.

twin girls who were born with severe developmental disabilities

Six years later, she was able to place her daughters into a Bay Area Housing Corporation home. The experience has been positive beyond anything she could have imagined. Her daughters each have a bedroom and a beautiful, warmly decorated home where they get the care they need. The staff is truly extended family.

Our staff is very lean. This small group makes sure our organization provides customized housing and property management for the developmentally disabled population.

We also spend a significant amount of time on advocacy and community relations to benefit them.

Your donation will help with our operating costs.

You will transform a life!

Thank you for helping us make a difference in the lives of people living with developmental disabilities!

Will You Help?

Silicon Valley Gives raises money for local nonprofits through a single online donation platform, providing a simple way to connect donors to the charitable causes they care about most and encourage them to take action.